Disclaimer

This is not meant to be a "poor me" blog - just an account of how I am coping with rheumatoid arthritis.

If it ever descends into self pity please let me know or give me a kick up the bum!

Also - please bear with me. I have never written a blog before so I will probably make many mistakes!

Rob

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Just under a year!

My last post was just under a year ago. Sorry but I have obviously been neglecting this blog. I will try to do better in the future! Quite a bit has happened since my last post but the main thing is that I have started on biologic infusions and they have been a complete life changer to the extent that, at times, I barely know that I have RA at all. The first time was in March. I went to the rheumatoid clinic at eight thirty in the morning and was there until around three. During this time I had a couple of drips before the main one which was a dose of  rituximab which apparently attacks the B cells which cause inflammation. The first two infusions were of antihistamine followed by, I think, a flush of some sorts. This was followed up a couple of weeks later by a second  rituximab infusion and was a wee bit shorter. For the first few weeks there was no real difference but then things started to change. For a start there was a lot less pain in my knees and hands, then the pain m...
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25.5%? Not this time.

One of the readers of the last post messaged me to let me know that only 25.5% of the content related to my arthritis while 26.9% related to music. Let's see if I can redress the balance a little in this post. I said at the beginning that I did not want to turn this into a"poor me" kind of blog but I have had a really bad day, so I thought that it would share it with you to give a kind of flavour of what arthritis can be like. Last night I woke up several times and was in pain every time. It seemed that almost every part of my body ached - not in a flu-like way as I had not temperature but in a muscular and joint sort of way. The worst parts were my knees and arms, my left arm in particular. Turning over in bed was agony and, because of my knees, going to the toilet was a nightmare and I had to hold on to lots of things in order to climb the few stairs that I needed to. Coming back down was even worse. When I eventually decided to get out of bed I had very little motivati...
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Banter and sticks

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